Tues 11th: Dysregulated sleep last night, again – dysregulated brain this morning, again. CFS symptoms code red – had to cancel everything and do bedrest. Main activity – answering door to my Romosozumab delivery and getting it into fridge. This is my Osteoporosis medication – two big injections that I must self administer once a month for a year to help my bones regrow. My sister M has the same; my sister B a different med that she must inject daily. Frigging genes.

Weds 12th: Still feel terrible, my CNS run amok, my most hated state – totally wired but totally unable to either rest or be active. After breakfast I do 5 hours deliberate bedrest in order to find the juice to get out to my health appointment.